Reply To: Let’s Talk About Work & Myasthenia Gravis

  • Community Member

    Member

    I used to work as a computer consultant, visiting clients in their work or home.

    After my Myesthenia diagnosis and rehab, most of my clients had moved to someone else.

    I stayed working remotely, but was basically semi retired. I had to move to an assisted living facility, and still do part time remote work, but nothing substantial. I am working on building stamina, but MG can just sneak up on you. My Neuro told me some greta advice. When you awaken, you have ¾ of a gas tank. You should never get lover than ¼ of a tank or you risk going into crisis. Spend your energy wisely. Teaching this to therapists is maddening. I try to stay patient and stay curious. That helps me get thru the day.