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Traveling Solo with MG
For the first time in over a decade, columnist Shawna Barnes feels good enough to travel solo. She is sharing her tips in her newest article, https://forumsstg.myastheniagravisnews.com/columns/travel-with-chronic-illness-3-tips/.
Have you been able to travel since having MG?
Does your MG make it possible for you to travel solo?
What travel plans do you have for this year?
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4 Replies
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I’ve been traveling only in the us. And I’ve been seeing friends and family for the last year
Before I pack i research the best hospitals for mg and best neurologist I also take go file with kits of mg info in case I need it
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Am I the only person with gMG that has problems driving very far in a car? I can drive for 1 hour, have lunch with someone and return and I’m okay – tired, but okay. But anything more than that I become extremely fatigued – to the extent that I think I’m close to having a MG crisis. If my wife drives and I’m a passenger, I can go 1 1/2 hours each way, but that’s it.
I guess the good news is that my 5-year old car only has 33,000 miles on it:)
If anyone else has had this problem and overcome it, I’d love to know how you’ve done so. Thanks.
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Hey Robert! I think this discussion and story about experiences with MG and driving would be of interest to you:
https://forumsstg.myastheniagravisnews.com/forums/forums/topic/eyesight-causing-driving-difficulties/
https://forumsstg.myastheniagravisnews.com/columns/working-while-diagnosed-with-myasthenia-gravis/
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I’ve traveled in my car with my service dog from Louisiana to Florida and took plenty of medication with me and had no problems related to myasthenia gravis. However, I do have a colostomy bag that frequently leaks and I had an incident with the bag occurring new return trip where I had to stop clean myself off, clean out my car change my clothes, change the bag, and make sure that my dog did not get into the mess in the car. I’ve also travel by plane to Cleveland Ohio from Louisiana on the return trip. The bag broke again, and I had to clean up the bathroom floors in the airplane along with my clothes, and I had to sit with wet clothes for two hours, but myasthenia gravis is never affected me And affects me mostly at home with swallowing food and what I have to do is because I also have a Soffa guess problems just be patient and eat slow and eat cold food because I can’t eat hot food. It just gags me and I throw it up. I plan on having surgery again this May on my colon. Hopefully this doctor will get things straightened out so I don’t have to worry about bags leaking but myasthenia gravis is not effective and I don’t think it will affect me in the future.
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