• Symptoms

    Posted by Community Member on August 19, 2026 at 11:15 am

    I was recently diagnosed with MG. Among the other symptoms, I’m having trouble when I bend down and bend my head to look down, i have trouble raising back up. I get dizzy and very stiff in my neck. Any one else experienced this?

    Community Member replied 2 Members · 4 Replies
  • 4 Replies
  • Community Member

    Member

    I remember in the early days of MG that my neck would be weak like a bobblehead. I remember it being a worry because weak neck translates to weak diaphragm.

  • Community Member

    Member

    Thank you. Are you on any medications and if so did they help?

    • Community Member

      Member

      I’m on mestinon ER and regular, prednisone and cellcept. The weak neck and a lot of other MG symptoms greatly improved after a few months of being on those meds

  • Community Member

    Member

    Thank you. That is very encouraging.

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