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Optimum time to take Mestinon prior to exercise
I recently started physical therapy in a pool. I meet one on one with a physical therapis and spend about 45 minutes in the water. My problem is two fold the buoyancy of the water really masks my weakness and I take my Mestinon every 4 hours and it seems like I can’t get the timing right so I can manage to get out of the pool without feeling as weak as a new kitten.i love the pool and I can walk on the pool tread mill for 20+ minutes without any joint pain. Has anyone found an exercise they can do daily that doesnt exacerbate their MG, but gentle on their joints or found a better way to dose their Mestinon to help with the weakness. Thanks
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3 Replies
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I have mentioned before that the pool is my lifeline in the Summer. I swim up to 20 lengths which is about 10 lengths of a standard olympic size pool. I also find that my energie levels go up quickly and hy keep my wet swimsuit on the entire day. It does effect my muscle weakness and my toes do a merry dance at night but, I take my last mestinon no later than 5 in the afternoon. Helps with the cramps caused by the Mestinon.
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Unfortunately after years of taking Mestinon and a supporting med Pyrodistigmide, I can no longer tolerate stomach issues due to these meds. I understand this is not uncommon for those over 65.
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I had been adjusting my Mestinone levels on a regular basis since I began treatment 4 years ago. I finally found a level that works for me…180mg slow acting pill. I take it once in the morning! I exercise on a regular basis doing sit-ups and various positions, repetition and weights on a universal gym. I never seem to get winded by my workouts. If I have a “stress” activity planned, I sometimes take a half of a 60mg Mestinone prior…
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