• Newly Diagnosed

  Newly diagnosed

  Posted by Community Member on February 20, 2026 at 7:09 am

  Due to a cancelation, i was able to see my neuromuscular specialist and she doesn’t think I have MG (seronegative) now… I am so confused after the pyridostigmine worked. She said it would work with anyone to give them a boost…she didn’t tell me to stop taking them but said she wouldn’t refill them.

  Testing me now for Pompeii disease and myositis. Setting ENT to address my hoarse voice and my swallowing issues. Also HEX4 urine test, a genetic test to be analyzed by Mayo, and blood test for myositis…sigh..

  Two questions: keep taking pyridostigmine and how much more testing?

  Community Member replied 1 Member · 0 Replies
• 0 Replies

Log In to Reply