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Lessons Learned From Caregiving
In my early days of MG, my mom and sister were my primary caregivers. At the time, I was overwhelmed with trying to treat my MG. I only recently asked them what they learned from being a caregiver.
Both learned the most about patience. Like me, they wanted my MG to leave, but they realized that my treatments could take years to work; they may not have worked at all. Luckily they did, but it was a long journey.
What lessons have you learned from being a caregiver to someone with MG? Has your experience being a caregiver changed how you tackle challenges in other parts of your life?
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1 Reply
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I’m not a caregiver myself, but I can say that my boyfriend and I have both learned so much about communication and truly listening to each other.
During flare-ups, we can both feel anxious, overwhelmed, and a little lost. If we each retreat into our own bubble, he won’t know how to help me, and I can end up feeling frustrated or misunderstood. We’ve had to learn how to communicate what we need, even when emotions are high.
It has taught us a lot about effective communication, patience, and being present for each other without always needing to have a solution.
Thank you for sharing your story—it’s really interesting to hear what caregiving has taught others. ❤️
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