Myasthenia Gravis News Community › Forums › Newly Diagnosed › How did your family and friends react to your diagnosis?

  • How did your family and friends react to your diagnosis?

    Posted by Community Member on November 19, 2024 at 9:00 am

    Are your family and friends as overwhelmed as you are/were when you got diagnosed with MG?

     

    How are you helping them to understand what MG is and how it affects you?

    Community Member replied 3 Members · 2 Replies
  • 2 Replies
  • Community Member

    Member

    Shocked and didn’t understand. For me, it was like being struck by lightning. One day I was fine, the next I wasn’t. Explaining the disease to them was easy. Them discovering that you can’t really “see” my symptoms has taken more time and patience. I appear to be fine on the outside. As soon as I speak though, it’s a different story.

  • Community Member

    Member

    In my case, confusion and shock. My older brother is still confused as to how I caught the illness. As am I for that matter.

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