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Hello!
I’m Dana, and I first started getting symptoms after a mystery illness that my doctors still can’t explain. The best they could offer was possibly an enterovirus and a mild meningitis. It was a long diagnosis journey. I’m seronegative, and my ocular symptoms started in July 2023. I had an exacerbation in September 2024 after I forgot my low-dose naltrexone.
MG is my fourth autoimmune condition, and it is the most unusual. I’m a control freak, and this is something I truly can’t control. In 2023-2024 my symptoms were ocular, 2024-2025, my neck and limb symptoms were the worst, and now in 2026, I feel like my diaphragm weakness is the worst of my symptoms.
I look forward to meeting you all and learning from you!
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1 Reply
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Hi Dana, welcome to the community!
I’m Sarah, a columnist and forum moderator. Thank you for sharing your diagnosis journey with us.
I understand how overwhelming an MG diagnosis can be, especially when symptoms are unpredictable and constantly changing. It can be difficult to navigate a condition that we’re not always given enough information about.
I’d love to share my adaptation column with you: Can Living With Myasthenia Gravis Have Benefits? . In it, I talk about how I’ve learned to adapt to MG’s unpredictability and how I’ve started approaching it as a journey of self-discovery and personal growth rather than seeing it as an enemy.
Please feel free to share your experiences and thoughts in the other forum topics, too. I’m looking forward to getting to know you and exchanging more with you! ❤️
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