Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Have you experienced any gaslighting regarding your MG recently?

  • Have you experienced any gaslighting regarding your MG recently?

    Posted by Community Member on April 30, 2024 at 7:00 am
    Have you experienced any medical gaslighting (healthcare professional dismiss your symptoms) regarding your MG recently? 
    Community Member replied 5 Members · 4 Replies
  • 4 Replies
  • Community Member

    Member

    Not for my MG, but definitely for my Parkinson’s and seizures from young doctors, so I’m getting another opinion from an older more experienced neurologist

  • Community Member

    Member

    Yes, after 6 years of treatment . My doctor decided that I don’t have MG , it’s not even a neurological problem . And she can’t help me . This after I was in the hospital for 3 days because of a crisis . Because I’m seronegative .

    The home health nurse , physical therapist , and new doctor disagree with her . It’s not “nerves” , asthma , or any of the other things she suggested .

  • Community Member

    Member

    I was diagnosed with MG five years ago. It wasn’t until I found a neuro-muscular neurologist that I began receiving the proper treatment. He is caring, receptive and very knowledgable. I finally am able to deal with it and have a life, albeit more limited.

  • Community Member

    Member

    So far, no. But I’ll know now what to look out for.

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