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Back Pain and weakness causes?
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As many have replied that they have suffered with bad backs for years, add me to the list! However, I have found that PT helps me ALOT. I started PT in Jan. 2023 after having an Achilles tendon reconstruction, but continued because my excellent Physical Therapist works with my whole body. He notices when my back is not straight due to fatigue, shoulders slumping etc. I just got a renewal prescription from my PCP to continue as we work on strenthening my core, arms and legs, and I feel so much better. Just a thought! Oh, in the past I have needed steroid injections, but since I had to go back on Prednisone, that helped my back too….they just want to get me off of it!
I have an unrelated question to this string, is anyone experiencing jaw pain? This started about 7 months ago when I kind of went backwards. Vyvgart helped me for a couple of months, but then I got not more than a few days to a week of relief so we stopped. I then had 4 rounds of Rituxan in November and will have another 4 in May. They have helped me some, but not as much as I had hoped. Luckily, my main symptoms are all above my neck now…slurred speech, jaw pain and dropping eyelids. The fatigue has faded, I no longer need naps unless I do not get a good night’s sleep. SO..that’s why I used the word lucky. I have an excellent Neurologist and Oncologist working as a team while we try the Rituxan. Next step will be a complement drug if I do not achieve the desired outcome. I take a Menigitis vaccine before the Rituxan infusions and have had no complications. Obviously I will have to do the same if i change to a complement drug.
Please share if anyone is experiencing jaw pain as I have been on Prolia for 7 years for my osteoporosis, and jaw pain can be a complication of Prolia which leads to jaw bone disintergration…oh my!
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I had no idea that my lower back pain and frequent injury had anything to do with this until I was diagnosed and first took Mestinon. Immediate difference! But I highly recommend trying Huperzine A in place of that. It works so much better for me, no fasciculations, and my back is so much stronger when I take it. However, I do take a break one week out of the month to take Mestinon because Huperzine can supposedly build up in the brain. I feel like it stops working as well at that point anyway, so I sort of do a little week-long cleanse at that point to refresh. It’s hard though, since it doesn’t work as well. I hate that week! Haha. I also highly recommend physical therapy and regular exercise to keep your spine aligned and back straight. Strengthening your core muscles is important too.
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Plain and simple, YES! Muscles in your WHOLE body go to hell.
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At some point your muscles are so weak the you can no longer do PT.
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That is true. Properly done, physical therapy is such a great healing tool even for someone who is nearly paralyzed. (My partner had a stroke and is hemiplegic, and the right physical therapy is a total game-changer.) But with MG, we are so easily completely exhausted that even just getting out of the house to go to the PT appointment can be too much. It’s so hard.
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Yes it helps but there is no cure, just do the best you can. Pyridostigmine helps me but it gives me bloating and gas. Ask your doctor. Good luck…
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I can relate to the discussion about how difficult it can be to separate symptoms caused by an existing back condition from those related to muscle weakness. When weakness affects the core and supporting muscles, even routine tasks like standing, cooking, or doing chores can become exhausting. It’s encouraging to see people sharing their experiences, because sometimes hearing similar stories helps when trying to make sense of what’s going on. Wishing everyone here the best in finding answers and effective treatment options.
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This is a valuable discussion. While medical treatment should always come first, many people also look at nutrition as part of their overall wellness plan when dealing with weakness, fatigue, or musculoskeletal discomfort. If anyone is researching the <strong data-start=”884″ data-end=”918″>Best Supplements for Back Pain, I found this resource helpful because it explains how certain vitamins and nutrients may support spinal, muscle, and nerve health: https://spinedocs.org/top-supplements-for-spinal-health/ . t’s a good educational read to complement conversations with healthcare providers about long-term back health.
spinedocs.org
Best Supplements for Back Pain, Pain and Inflammation - Spine Docs
Find the best supplements for back pain, pain relief, and inflammation support. Learn how natural ingredients may help reduce discomfort and improve mobility.
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I injured my back, had surgery and I didn’t know about MG till years later! I shouldn’t have gotten hurt at what I did.
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I use a TENS unit for my back pain, it’s not a cure but it does help.
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I can definitely relate to the frustration of dealing with both back pain and muscle weakness. It seems many people with MG experience similar challenges, especially when standing or walking for long periods. Along with working closely with your healthcare team and physical therapy, paying attention to nutrition may also help support overall muscle and nerve health. I recently found some useful information on <strong data-start=”415″ data-end=”449″><strong data-start=”415″ data-end=”449″>Best Supplements for Back Pain [ https://spinedocs.org/top-supplements-for-spinal-health/] which discusses nutrients that support spine and muscle health. Wishing everyone continued strength and steady improvement.
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Back pain yes have had before MG, high nutrient diet (greens, beans, onions,x mushrooms, nuts, seeds & berries) all organic and nothing processed. Energy depletion is my major concern. Muscle cramps are minimal. Fatigued most days, energy highest in the morning. Meds have a constipation or diarrhea effect most days, Have to plan your day carefully And stay ahead of potential issues.
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I can definitely relate to the frustration of trying to figure out whether the pain is coming from MG itself or from a separate spine issue. It seems like a lot of people end up dealing with more than one condition at the same time, which makes it difficult to know what’s causing what. My neurologist also explained that while MG can weaken the muscles that support your back and core, structural problems like disc degeneration or spinal stenosis can exist alongside it, so it’s worth looking at both possibilities.
I was reading about degenerative disc disease recently because it runs in my family, and I found this article helpful for understanding how genetics and lifestyle both contribute: https://spinedocs.org/is-degenerative-disc-disease-hereditary/. It doesn’t suggest that everything is hereditary, but it does explain why some people may be more susceptible than others.
spinedocs.org
Is degenerative disc disease hereditary? - Spine Docs
Is degenerative disc disease hereditary? Learn how genetics influence spinal disc degeneration, risk factors, and what it means for long-term spine health.
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Ethan,
I’ve been diagnosed with MG in 2002 and since I consider myself one of the kings of comorbidities! I have stenosis at my cervical and lumbar spine. I’m trying to strengthen those muscles but it is slow!
Thanks for the link!
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The thing about MG is your weakest muscles is wear MG is going show up first so if you had back problems expect your MG to be worse in the areas you had back problems. I had bell’s palsy and hip problems before MG and those are always the first places my MG attacks.
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That is so true. My doctor would not believe I had Mg for two years. Finally went to another doctor that found it, but in that period of time my back issues and I had stenosis and degenerative disc disease and whatever got so severe that I went from walking around to a walker and now going for major surgery this month. Let start the neck go all the way down to the lower spine and do six fusions and scoliosis. At this point, I’m pretty much homebound and have caretakers so praying that I can get some of my life back.. Thank God, I found that other doctor.
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