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AGE AT Diagnosis
I was and I am 87. I can’t tell MG symptoms from old age symptoms, except for breathing issues, which are improving with meds.
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13 Replies
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It’s great to hear that your breathing issues are improving with medication. Every bit of progress counts! It can undoubtedly be challenging to distinguish between symptoms of MG and those that come with aging.
Symptoms, including drooping eyelids, double vision, arm or leg weakness, difficulty swallowing or speaking, and pain, can overlap with normal aging. Keeping a journal of symptoms, when they occur, and what triggers them can help you and your doctor determine the cause.
Jodi, Team Member
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I was 50 (almost 51) at diagnosis.
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I was 66, last year. Went to my eye doctor with a droopy right eye (I thought I was having an allergic reaction). She identified it immediately- called my PCP and asked that blood tests be done ASAP. I’m lucky I guess; no spending months and years trying to figure out what was wrong. I’m mostly stable with few flares or other symptoms other than fatigue with my current medication.
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I was diagnosed in March 2026 just before i passed 80yo.
Initially with the occular version but this rapidly progressed to gMG
Had IVIG in April 2026 which seem to work for a while and then <b tabindex=”-1″>Rituximab by Iv in early August 2026.
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Diagnosed at 47. Went to eye dr for double vision, blood tests were ordered, and diagnosis was made not long after developing symptoms. I’m luckier than a lot of people who have to go years without a proper diagnosis.
I hear you, though, about the overlapping of symptoms with other conditions and issues.
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I was diagnosed at 67 and I’m currently 70. Yes, it’s often difficult to distinguish the source of my issues, rheumatoid arthritis, asthma, or aging? It’s often hard to say. Chewing fatigue, eyelid droop, and double vision seem to clearly be MG. Shortness of breath, fatigue, and rising from a chair are less definitive. If I’m suffering from one of the more obvious symptoms at the time, I tend to attribute the others to MG also. If not, then I blame one of the other issues.
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I use an MG tracker weekly who has really helped me to see myself more clearly. My neurologist isn’t interested in my tracking but I know that it’s helpful to me knowing where I’m at. The last question each week ends with “given what you have noted is your current medication enough ?” That really helps me to think about the situation and decide.
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I was 79.
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I was 82
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I was diagnosed at the age of 12. Currently 55 years old with a lots of rollercoaster on this journey.
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I’m 71 and diagnosed last month with ocular mg. I have Fibromyalgia arthritis in every joint from the waist down.and also suffer Mild Cognitive Impairment. I don’t know how I will know if the mg is progressing
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I was 72 when I was diagnosed. I was relatively fortunate that it took only a couple of months of testing before blood tests were done to confirm MG.
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I was 70 years old when I was diagnosed with symptoms of MG, January 6th, 2026. Symptoms were trouble speaking and swallowing. MRI showed mass extending over my heart. Prior to surgery my right eyelid began drooping. Had Thymectomy, April 8th found a thymoma, non-cancerous. After surgery began feeling better every day. It’s going on 6 months after surgery. reducing meds, daily taking 3, 60 mg Mestinon, 15 mg Prednisone, and 2 500 mg Cell Cept (Mycophenolate). Physically Feeling great no fatigue,
and drooping eyelid is corrected.
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Starting with sudden onset of severe but intermittent speech impediment, I was diagnosed within a week at the age of 65.
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