• Community Member

    Member

    Yes I attended the last MGFA Conference in Phoenix. I ZOOM with my four MG SUPPORT GROUPS. But ZOOMS sometimes have its “technical issues” where there is often no sound, no video, or its pop-up says AH SHUCKS or AW SNAP … and you have to sign back in. So the Phoenix Conference was WONDERFUL … as you could meet other MG Victims … and compare notes, ask questions, and see where they are from … should your MG get STABLE ENOUGH and IN REMISSION … so that it is safe to travel out of town. So the best part was sitting around the outdoor Phoenix hotel during session breaks eating from the buffet and ASKING IN PERSON … how the other MG attending are SURVIVING with their own situation. What is their story, their meds, their recommendations for MG INTELLIGENT DOCTORS, who have at least heard of our disease. I also tried my “Two minute elevator speech” with people and booths. Every one treats that 29 year old MG-ADL paper (from 1997 Texas) , … as if it was a HOLY GRAIL, when it has never been revised and only has 8 of my 18 MG symptoms.