Myasthenia Gravis News Community › Forums › Healthcare and Treatments › Seronegative myasthenia gravis: share your experience › Reply To: Seronegative myasthenia gravis: share your experience

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    I am seronegative and my EMG tests were all normal but my neuro-opthamologist is confident that her findings are consistent with ocular MG and that my symptoms are consistent with early stage generalized MG. Ive been managing on prednisone for 6 months while I went to dozens of doctors before her. I just started mestinon and its helping. So I feel like a fraud in so many ways – do I have it? Don’t I? The neuromuscular neurologist thinks its just small fiber neuropathy but that misses so many symptoms and is really just a description of a symptom cluster, not a cause.

     

    So its still a rough journey and I dont anticipate its going to get easier. I would love to connect with other seronegative people (or EMG normal, if those exists) as I could really use guidance as I try to navigate all this and the next steps.