Myasthenia Gravis News Community › Forums › Relationships and Social Life › You don’t look sick – How do you respond to that? › Reply To: You don’t look sick – How do you respond to that?

  • Community Member

    Member

    I have not found any good way to respond to this type of comment. I have a handicap placard for my car because if can’t walk very far without taking a break. I have a rollator that I don’t use very often. I guess if I did use the rollator, I would not get the nasty comments. But people either give me a sideways look or say something like “you don’t look handicapped” when I get out of my car. I typically ignore it. I think even some family members think I am “faking” it on my bad days because I have some good days when I can make a meal or do some cleaning or go out to eat. I never know how to handle it and it has definitely taken a toll on my mental health. I have been taking prednisone for almost a year now. I am starting to wean off but had some setbacks with the weaning process. I was about 20 pounds overweight when I was diagnosed a year ago and I have gained an additional 20 pounds on top of that. I desperately want to get this weight off and that has contributed to my depression as well. I most likely will seek the help of a therapist. I am taking an anti-depressant which has helped somewhat. Thankfully, I have a very compassionate medical team.