Reply To: What is your most debilitating symptom?

[Community Member]

First of all this fatigue that seems to mildew my whole life and secondly the loss of mobility caused by portentous concurrence of orthopedic problems and muscle weakness.

My lack of mobility is quite obvious once I show up with a rollator. With respect to fatigue the mildew picture describes fairly well the constraining of my former spontaneity and enthusiasm.

I would also describe this feeling of helplessness as you never know what your strength or energy level is going to be like. Just imagine -I would tell my friends – living in this kind of uncertainty.