-
Terrible! I’m still learning but I am advocating for myself. My wife recently had her 70th birthday…all with recovering from GBS. So her birthday was at my daughter’s house but that involved lots of visitors, heat, sun, no rest. Long story short, I got out of the hospital yesterday after being there after 4 days. Got second round (one week early) of IVIG (X 2 days) and upped my mestonin from 3 per day to 5 -6. Trying to slow down…but need the heat down in Chicago. Keeping a journal and daily mg symptom book to take to the mg (specialty) doc at the end of September.