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My journey with MG has impacted every aspect of my since my diagnosis and first crash in 2014. We’ve worked through so many trial and bust and we have finally arrived at combination of daily prednisolone, and biweekly Apheresis treatments followed by a Soliris infusion. So, our vacations a are scheduled around these regimen and can be limited to be tied to the 14-day leash. But the alternative is more crashes with every other treatment we tried and we have just learned to be creative in our planning. We live with a “big” mentality; it’s not that I’ve got to have a treatment every two weeks but more that we get to do so much because we have found a treatment regimen that keeps my gMG at bay so I can enjoy life!