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Eyelid drooping and problems regarding facial expressions were the first visible changes in my appearance. It was tough when friends and family members obviously had to fight their tears while looking at me. While these changes could managed fairly well through medication, it was the enormous weight gain and a distinct moon face resulting from prednisone medication that really devastated me. Especially in combination with amyotrophia and the loss of strenght.
First step was to be patient and to accept these changes for the time being. Next steps were to reduce medication in accordance with medical advice, to change nutrition and to intensify physical exercise.
After two years of MG in terms of weight I am back on the pre-MG level. I am still misssing strength and muscles to move confidently, but even being dependent on a rollator walker I feel a lot more self confident. It´s still a long way to go and patience will remain to be key…