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I’m fortunate to be able to maintain a fairly normal lifestyle using a low daily dose of prednisone (2mg) along with mycophenolate (2000mg). In the past, I had a mild crisis after dropping to 0mg prednisone and 1500mg mycophenolate daily, though considerable stress may have contributed to the relapse.
After a plasma pheresis treatment and a return to previous levels of prednisone, my condition has been stable for a year. I’m working with my neurologist to wean off prednisone but likely will remain at 2000mg mycophenolate for another year.