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Wow, thank you for sharing all of that. I have had similar frustrations with primary care providers. It’s disheartening how long it took for you to get answers, especially when you knew something serious was going on and weren’t being listened to. I encourage you to share your experience in the following discussion: https://forumsstg.myastheniagravisnews.com/forums/forums/topic/have-you-experienced-any-gaslighting-regarding-your-mg-recently/.
I’m so glad your neurologist finally gave you the needed answers and put you on the right track toward healing. It’s crazy how quickly things can transpire, and answers come to light once a doctor listens. I am so sorry about your fall and broken neck on top of everything, you’ve really been through it. It’s such good news to hear the surgery went well.
Has your doctor changed any of your treatment doses as your MG symptoms have increased? -Jodi, Team Member