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I told myself I would’ve pushed these doctors harder. I feel the doctor’s hands are so tied so much by insurance companies. They’re not taking the time with the patient. I was told it was because of my age because I have buried my husband and my mother and my mother-in-law that things in my life, but they never went deeper but the debilitating fatigue and every symptom was just right there, five doctors missed it. The shortness of breath the fatigue and the lack of muscle strength could’ve been handled much better if I was diagnosed earlier, at least I feel it could be and you’re right finding the right neurologist who will work with you and work with your insurance company is a real plus for you. Getting an appointment is another challenge. I was very fortunate that my ophthalmologist said I explained my symptoms to a tee and he called and got me in with the neurologist the very next morning. Hoping this third type of treatment helps me. This is a journey you must take along and be the best advocate you can for yourself.