• Community Member

    Member

    Yes! I had forgotten about this until today when I almost fell ‘off’ of the crosswalk! LOL

    Joe’s description of it being like walking on a boat is spot on. And if I lose balance while standing still, it is like I am tipping over.

    Interesting side note- my neuromuscular specialist in MG told me that both of these things were nonsensical and he had never heard of them. People, please tell your doctor everything, even if you think it sounds weird or silly. The only way for our doctors to get the education they need on how to best help us has to come from us.