Myasthenia Gravis News Community › Forums › Healthcare and Treatments › What is one thing you have difficulty with that you took for granted before you had MG? › Reply To: What is one thing you have difficulty with that you took for granted before you had MG?

  • Community Member

    Member

    Good evening,

    Talking and swallowing have been my first and biggest challenges. I did quite a lot of talking, at work, in church, on stage and whenever I would meet people. At my different jobs just before my retirement and thereafter. I did a whole bunch of talking as part of my different jobs. I spoke with my customers while I delivered mail. I gave safety talks as the Safety and Health Division. I would teach bible classes and did the narrations for church plays. After retiring, I worked at a Six Flags Parks where I drove the Trams, transporting guests to and from the parking lots, we would verbally give a spiel during the ride. I also worked at a Mental Health Center at the front desk where talking was a necessity. Now, my MG kicks in quicker than before. My voice thickens becomes garbled within minutes. I don’t do any of those activities any longer. Simply because, I don’t know exactly when the issue will kick in. Swallowing has always been difficult since 2012, which led me finally to my Neurologist, who diagnosed my Myasthenia Gravis. MG was managed until last summer when my symptoms began increasing in numbers and severity. When I get enough sleep and rest, I can do many of those things which I enjoy, but I need to keep aware of MG kicking in. I’m always trying to talk to people in moderation.