Myasthenia Gravis News Community › Forums › Navigating School and Work › What do you do with your days? › Reply To: What do you do with your days?
-
Community Member
MemberI had to stop nursing 2016,2017 fell breaking ankle and needing help to do white dove release business. Blurred vision and eye pain sidelined writing. Finally got disability 2020 when was at miserable low.2021 demanded trial of mestinon despite seroneg and started feeling better and slowly could do more. Still mostly in the house,hair is longer,can walk further with cane,upright walker lets that happen without back,hip pain. Still have to laydown with bipap in afternoon. Must be in bed by 2100 when exhaustion makes balance go.
Basically not well