-
I hear your fear. Those of us who are sero negative,have endured gaslighting by MDs,have a tenuous stability, on Medicare and SS carry huge amounts of stress. It was insensitive of other responders to relegate fear to banal politics.
I was terrified by unexplained Mestinon shortages last year as this allowing me to eat,breathe,live independently…nothing big ,right? I recently got a letter saying mestinon/pyridostigmine won’t be covered ‘try something else’. Of course this med is accepted as frontline treatment in every other country.
I think we need to support each other in the insecurity of illness and living in the US