• Community Member

    Member

    Hello Friends:

    Yes definitely. I was diagnosed in Feb. 2019 and have had vertigo and unsteadiness ever since. My DIL says I look like a little ole drunk man walking! I have blamed it on the medicine I have been on but I am not sure that is everything. I also have COPD and Interstitial Lung Disease and use a nebulizer and flutter valve four times a day for the medicine and to exercise my lungs. It only takes 10 minutes or so the get the medicine in my system but I continue with exercise for about 30. I developed these problems with my lings after the neurologist decided to take me off IVIG and try Ultomiris. The most common side effects of Ultomiris are upper Respiratory Tract Infections. I have been susceptible to respiratory tract infections all my life and then I smoked as a young person. I was admitted to the hospital with severe lung failure about September 2023 and diagnosed with COPD and Interstitial Lung Disease, both of which the doctors said had no cure. My treatments leave me very unsteady, but I am trying to strengthen myself.