Reply To: What dose of Mestinon (Pyridostigmine) and how often has worked well for your body?

[Community Member]

I was originally on Mestinon, 30mg 4 x day, which lasted for a short period of time. I guess it was an initial trial period, to see how my body handled the meds. Once I was used to the meds, my Neurologist told me to, step it up, to a full pill 60mg 4 x day, which has been working fine.

If I get tired or my eyelids need a little extra lift, I just take an extra dose to suffice.

My Neurologist is pretty good and actually heads up a Myasthenia Gravis Clinic in my area. Unfortunately, she doesn’t like prescribing the Mestinon 180 ER scripts, stating that they start in your system to long, so I don’t have a chance to see if those will work for me.

My Neurologist has also been talking about putting me on CellCept, to possibly put the MG into remission, so we will see where that goes.

I am curious how others have felt while on CellCept. I haven’t really read any bad reviews for people while on CellCept, although, I understand it does take some time before you see any changes or good results.

May we all, Live Long and Prosper. …