• Community Member

    Member

    I have GMG, my Bulbar symptoms are worse. I’m 78 and have the Trifecta of hEDS, MCAS, and POTS. The hEDS can cause me to pull a muscle or otherwise injure myself while doing nothing!

    Exercise is something I’ve done and taught. I find Online or DVDs of Qigong and Tai Chi work for me as it’s easy to set my own pace and relaxing. I had to start easy, and adjust as necessary, especially with the hEDS. I can chose to pause the recordings, or follow sitting in a chair, or even lying down. I’ve done the forms mentally to help me fall asleep. Best of all, I am working on using the energy to direct healing! I wish I had started it from a young age, but it is never too late.