Myasthenia Gravis News Community › Forums › Newly Diagnosed › What is your most debilitating symptom? › Reply To: What is your most debilitating symptom?

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    Paul, my symptoms appeared slowly; a slightly drooping left eyelid, occasional unexplainable fatigue, achy neck, etc. Then one day double vision clicked in and didn’t leave for 18 months. I had not yet been diagnosed. A couple of things helped with the double vision. One was that although I could never properly wink I now could just let that left eyelid stay down and watch tv, read, or do things around the house without having to deal with the double images. The second thing was that I tried to figure out how to go out with double vision without everyone staring at me – very dark sun glasses helped though I still had double vision – then I had the idea to tape a piece of paper over the left lens on the inside….voila, single vision. I hit on that only because I could not tolerate an eye patch, which is actually a simpler solution. I hope you can find what works with you. My double vision was sometimes intermittent. I don’t know how long you have been struggling with it and I hope that you will find an aid that works with you. Eventually I was diagnosed with MuSK MG and was able to get Rituxan infusions which eliminated the double vision quickly. I am now at a point of minimal manifestation, near remission but some minor symptoms daily. Currently I have a neck problem but I am not certain it is due to MG.