Myasthenia Gravis News Community › Forums › Newly Diagnosed › What is your most debilitating symptom? › Reply To: What is your most debilitating symptom?

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    Currently my most debilitating symptom is my weak neck and shoulder muscles. It seems to be affecting only my right side and there was no pain at the beginning but now the pain is there 24/7 and it seems there is no position to lay or even sit up and hold my head comfortably. I know pain is secondary and not a primary symptom of MG but I think it is caused by the constant, though unconscious, effort to sit and stand straight and hold my head up. When it started it seems like my head was being drawn down and to the side and now it seems like I control it better but the price is constant muscle strain and pain. Does anyone else have this issue?