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My MG journey has been multiple hospitalizations in crisis and multiple drugs that only work a short time. But if you ask my friends and family. they would say they never would have known it they hadn’t seen me in the hospital on bipap or ventilator. That is because I don’t let it get me down yes I am immunosuppressed and immunoglobulin deficient and probably should live in a bubble but where is the fun in that. Sure I can’t go to my house in Florida and do things like kayak and walk the beach,or sea doo, myself . I find workarounds. I take a wheelchair to and off the plane,then rest for the rest of the day,I can’t walk the beach but I can roll on the boardwalk. I can’t kayak myself I tandem kayak and my husband does all the work,and I can’t sea doo and race and have a blast, but I can be a passenger and go slow. All while wearing a mask. Yes most things I can’t do anymore the way I used to,b I 7ut there are few things I don’t do as I can find work around for everything and my friends and family work with me. Do I have bad days yes when I end up back in the hospital, and yes I do have pity parties but I time them. So I don’t dwell on them.