Log in/Register

Myasthenia Gravis News Community › Forums › Healthcare and Treatments › My Shared Experience – Newly Diagnosed › Reply To: My Shared Experience – Newly Diagnosed

  • Community Member

    Member

    TO JQUEST:

    Thanks so much for sharing your experience and in such a detailed way. I do hope you don’t have a thymoma. My wife had one and had the surgery to remove her thymus. Its been over 4 years and her MG has been 100% under control with both Cellcept (Myophenalate Motifil) and IVIG (Gamaguard) every 8 weeks and now she may be able to even stop the IVIG completely and just stay on the Cellcept. Unfortunately, just recently my wife was diagnosed with esophageal cancer at the GEJ junction and right now her prognosis is not good. However, she’s still undergoing tests and we’re hoping to get some better news going forward. Good luck to you on your MG journey.

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .