Myasthenia Gravis News Community › Forums › Healthcare and Treatments › AChR Results, Thymona › Reply To: AChR Results, Thymona
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MemberHello david. I was diagnosed MG back in march 2023. My AchR-ab score was 28 before a thymectomy (no thymoma found but enlarged one considering my age of 59 years old). My thymectomy was 5 months after my MG diagnostic. My first infusion was when I faced a bulbar crisis (before thymectomy) and I was treated with IVIG for 5 days every 4 months since 2023. I have being improved a lot and my last infusion was last week after 5 months since the previous IVIG. My AchR-ab score is going down … right now it is 16 nmol/l (43% reduction rate…but still high)… it looks like IVIG not only helps to improve overall condition but it actually reduces production of AchR-ab…(I found a note on this from a MG medical paper)…keep in mind, as you sure know, IVIG does not work the same for everyone…this would be great to track the AchR-ab score every year… in my case I am measure it every 6 months. I found a great paper from a german research showing how those scores going down after thymectomy… Does anyone else have AchR-ab measurements to share?