Myasthenia Gravis News Community › Forums › Healthcare and Treatments › AChR Results, Thymona › Reply To: AChR Results, Thymona
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MemberI was 76 in Oct 2023 when my symptoms started. My Acetylcholine Receptor modulating Antibody was 107 (normal is less than 45). Acetylcholine Binding antibody was 67.8 (normal is less than 0.05). I ended up in the hospital with a Myasthnenia crisis for 2 weeks, during which time I had a plasmapheresis procedure, and immediately I could talk and swallow again. I had gone from 170 lbs down to 119 lbs. I had a Thymoma, so a thymectomy was done Feb 2024. Since then I am off all meds, but I’m receiving Soliris infusion every 2 weeks. Only symptoms now are atelectisis which affects my ability to catch my breath upon exertion, and weak back muscles which cause me to bend forward sometimes when walking. But overall God & good doctors have given me my life back.