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Hey Joe.
I had this long reply written and thought it shared..but it did not. So let’s try this again. 🙂
I am on Azathioprine (Imuran), prednisone, extended and immediate release pyridostigmine bromide (mestinon) and biweekly IVIG.
It has taken 5+ years to find a treatment plan that works for me. I noticed on your profile that you’ve been dealing with this for 8 months? Don’t give up on finding something that will work quite yet. Definitely talk to your care team about how you’re feeling and where you’re like to be.
Something else to consider is to take a look at what you are doing. Are you self-sabotaging by still trying to live life like the “old you”? I know this was hard for me to accept and really slow down and accept my diagnosis and what that meant. Sometimes we don’t give our bodies the opportunity to allow the meds to do their job because we are still trying to push beyond our limits. A year ago I was only able to do about 1,000 steps a day. I’m now up to 2,200 and surpass that on an almost regular basis. It’s almost time for me to up my daily goal. 🙂
If you haven’t yet, I encourage you to take a look at the the columns and resources that MG News has available. There are lots of reports and anecdotes about what has worked for folks. There are also new treatments and studies being rolled out all the time.
-Shawna