Reply To: I Went into remission

[Community Member]

Hi Sharon,

I told my wife, Karen, what you’ve said here because she has MG and she stopped both Cellcept and IVIGs simultaniously. After about 5 months, her MG symptoms returned and she had to then start back on both treatments. But because the Cellcept takes quite a while to become effective , she then had to have 3 IVIG treatments over 9 weeks before her symptoms stopped. Recently, she’s decided she’s now going to just stop the IVIG very soon and stay on the Cellcept ( 2 pills twice daily) and see if her symptoms don’t return. If they do, she’ll restart the IVIG ( she had been doing that beginning every 3 weeks and then increasing to every 8 weeks.) If anyone else has had my wife’s experience or yours, it would be really helpful to hear from them. Good luck and thanks for sharing.

Regards,

Ron