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Was diagnosed with MG in March of 2022. Began with 60mg of prednisone and Mestinon 60 mg 4x daily. Began Privigen infusions in April with slow reduction of prednisone. Was finally off prednisone in Aug 2022 as it wasn’t helping symptoms as hoped and concern of worsening osteoporosis. Very slow weaning off. Began Mycophenolatet and weaned off infusions, due to cost and concern of damage to veins. Eventually lowered mestinon to 30 mg 4x daily due to muscles spasms mainly in face. Worked with great Doctor of physical therapy to gain strength and had surgery last year for Thymectomy. Time will tell if that really helped.
Mestinon is a godsend! And doing ok on combination with Mycophenolate.
It’s difficult to find correct combination of meds, trial and error. I was lucky with a great neoromuscular neurologist that had history with MG patients. She retired last year and I miss her terribly. She referred me to a different neurologist who is knowledgeable, but just not same connection.
Hoping for the best for you!