• Community Member

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    Your experiences are not unique in dealing with your neurologist. My neurologist said my incontinence was not related to the myasthenia. My urologist says it is. Realizing the uninary sphincter is a voluntary muscle it makes sense that it is affected by the disease. The most important thing is, what are you experiencing? Now, how to deal with it? Diapers (I know, not a name we want to use) is the easiest solution. I wear two… a cheaper one on the inside and a Depends on the outside. Easy to go into the restroom stall and “rip off” the inside one and bingo… you have a fresh diaper without removing shoes and slacks/jeans in a public restroom. A more permanent solution is an Artificial Urinary Sphincter. An internal, surgically implanted device. Google it AND talk to your urologist. Granted surgery has risks for us but, worth a consideration. Good luck.