• Community Member

    Member

    liz,

    Your MG history sounds similar to mine down to, I had a Thymectomy in 2021. I experienced Gastro-Paresis (GP) after being on Vyvgart Infusion for a year 2022-2023. I also have High BP and was taking a daily diuretic, named Hydrochlorothiazide (HCTz) I was speaking with another MG patient where I receive infusions and he indicated he had experienced the same thing, ultimately traced to the HCTz & MG. He was not on Vyvgart as at the time it was not approved for Sero-Negative MG. So I tried reducing HCTz dose to every other day and wonderfully my GP symptoms resolved. So, all I’m saying it that you might want to consider any other Rx drugs you’re taking and possible contribution to GP symptoms. Especially if there have been any recent change to your MG treatment. I had been on IVIG in the 2 years prior to Vyvgart Infusion and had no problems with GP like symptoms.

    Good luck finding the source of the issue. GP symptoms are terrible as well as dealing with MG.

    Greynold