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I was on IVIG for just over a year, two days a month, back-to-back. Initially, all was great and I noticed marked improvement; I began to feel normal again. I was also on a medium to low dose of prednisone, as well as taking Mestinon as needed.
After about month 13 or 14, I was no longer noticing improvement after my infusions. After talking with my neurologist, we decided to give Vyvgart a try. He also put me on Imuran at the same time. Now, instead of planning my life around monthly infusions, I can go 10-12 weeks between cycles (once a week for 4 weeks). This has been a blessing for me — eating, chewing, talking, and singing are all back to normal. I do seem to still experience fatigue, but, then again, this has been a hot summer — and you know how we MGers love the heat 😉
Vyvgart is expensive, but for me, it’s worth it…and thank the Lord for my health plan’s $2k annual ceiling. Many of you may have plans that would cover it entirely.
Back to your question, David — If the IVIG is still working for you, that’s awesome. Either type of infusion forces you to plan ahead regarding things like vacation travel. Like I mentioned, when it worked for me, it was great. It was also only about a 5th of the cost of the Vyvgart. I hope you can stay with it for as long as possible. I’m crossing my fingers that the Vyvgart doesn’t begin to lose it’s effectiveness for me like the IVIG did.