-
“But you look so good.” A common refrain that I hear. Perhaps the comment is meant as a compliment. I would describe my MG as on the milder side, controlled with immunosuppressants and monthly IVIG. There is a lack of understanding about MG among lay people, but also medical personnel. Other than my neurologist, most of my other medical providers have very little understanding of how this disease can affect me. It is hard (and sometimes lonely) to have a chronic, not easily understood illness. I don’t see myself as a “MG warrior” nor do I identify as having a disability. I view myself as an advocate in my personal journey of MG.