• Community Member

    Member

    For the last 3 cycles I am receiving 4 weeks on, 2 weeks off. They refer to it as a 32 day circle. Its been great. While remission is not a possibility with vyvgart, (need it in your system) , it’s as near to feeling pre MG as ive been in 10 years. Im seronegative.

    Im also weaning off 5 mg prednisone and 4-5×60 mg. Mestinon.

    It seems many cannot go the full 3 weeks post 4th infusion. For me, I crashed at 2 weeks, until next cycle. So by the time I started again it would take 3 infusions too get back to baseline. So in reality I would only get 3 good / decent weeks in a 51 day cycle .