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I started on prednisone 20 mg/daily and had to go down to 10 mg due to headaches. I did OK on 10 mg for a couple of years, and asked my neurologist if I could taper off since I had gotten stable on Vyvgart and Pyridostigmine ER. I slow tapered off of it, but began to notice that I had increased slurring of speech and swallowing issues the last week to 10 days before my next series of Vyvgart infusions began.
Long story short, I now use 10 mg daily the last 7-10 days before my next round of infusions. I’m much happier using prednisone PRN versus having to use it daily. Talk to your neurologist about your options, especially possibly using it on a PRN basis.