• Community Member

    Member

    I’m glad IVIG working for you. I thought it was a miracle drug when I first took it for a year while Mycophenelate was taking effect. I also take prednisone and mestinon. After weaning off of IVIG I had a 3-4 good years. This past year I’ve gone down hill a lot. My previous neurologist tried Vyvgart infusions. But after 6, my IgG level was only 143 (low normal was in the high 600s). When he said he no other options, I found a new neurologist and am on IVIG once more. However, she doesn’t want to give it to me long term. So she increased my Mycophenelate which will take a couple of months to work. Then perhaps I can wean off of IVIG.