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Hi Bertie, my heart goes out to you, I’ve never had that treatment, but it sounds like you are experiencing many difficulties, and as a result, that is worrying. I am like you really, I keep getting my medication changed to find something that can regulate my condition. I’m currently on Prednisolone and methotrexate and I still have bad days and worse days. My speech at present is holding, but I can no longer walk. I’ve put my story on you tube under Teesside Ste&Dee. I hope you get sorted my friend, and please keep us all in the loop. The medication in England is way behind that of The USA sadly. We have so few cases here, around 10,000 and research us limited. Trying to explain to a neurologist is difficult, as I’m sure as yours, the condition can change hourly. Take care, sending you much love!