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I was diagnosed with MG-MuSK+ in 2009. I see my neurologist at Stanford as needed. I’ve had several plasmapheresis treatments, am currently on cellcept 2000mg/day and mestinon 60mg up to 5x a day and just went back on 20mg/day of prednisone, due to symptoms kicking up (double vision causes imbalance, unclear speaking and arm/leg weakness).
I was coming out of ICU 5 months ago and I had retuximab in hopes for better control of symptoms. I didn’t have any side affects from the infusion and would take another without hesitation if needed. Good luck to you.