• Community Member

    Member

    Everyone is different of course, but I do know that my doctor has sought “steriod-sparing treatment” as a long term goal because of the long term side effects of prednisone, some of which I am still wrestling with–osteoporosis. I was tapered off of prednisone which took some years and even got down to 1 mg of Prednisone, as the other treatment was ramped up. That treatment is mycophenolate or Cellcept, usually used to suppress the immune system in organ transplant (but not at such a high dose). It is very effective for me. MG is a puzzling disease requiring some sleuthing, and lots of determination, but I am grateful for the advances made and opportunities to be as productive and “near normal” many, many days. Press on, dear ones.