• Community Member

    Member

    I’m surprised your doctor is keeping you on prednisone alone. I know things are different in Canada where I’m located but the standard protocol here, according to my neurologist, is to start treating MG aggressively in the first year, e.g., mestinon plus starting with at least 20mg daily prednisone tapered off to 0 by the end of the year. Mestinon is continued as the maintenance dose if all goes well. Mestinon caused elevated liver enzymes for me so I was switched to mycophenylate mofetil six months in. I’m not thrilled about having to take immune suppressants instead of mestinon, but I’m hopeful that with so many new treatments on the horizon, another treatment that doesn’t suppress my entire immune system will be available here soon. I guess I should be thankful there are treatment options for MG, but I do empathize with your having to continue on predinisone.