• Community Member

    Member

    My day-to-day symptoms are managed with 90mg of pyridostigmine every 3 hrs while awake, and 15mg of methotrexate weekly. So I’ve only had IVIG when I’m in a major crisis and I’m already in the hospital. I’ve had headaches every time. My normal migraine meds helped, although they didn’t fully subside for a few days after. However, the last time I had IVIG, I ended up in “status migrainosis” meaning a severe intractable migraine. Plus, my labs were “off”. That lead to several days more in the hospital getting a cocktail of drugs. So in subsequent crises, I’ve had plasmapheresis (PLEX) which has worked extremely well with minimal side effects for me except for a little dizziness.