• Community Member

    Member

    The trials were done with a 50 day cycle and approved by the FDA, so that is what Vyvgart can recommend. Some patients have gotten their doctor and insurance to try different schedules like 2 weeks on, and 2 off, or every other week to achieve fewer symptoms and no dips in scores. Ends up the same amount of meds. I was able to stop Mestinon, I still have fatigue, but no hospitalizations since I began Vyvgart. Big improvement from 3 per year! Studies are being done overseas for every other week dosing which might help some. I have seen threads by patients who had success asking for every other week. when their doctors heard from other specialist who had allowed this variation, the doctors became willing to try, Good luck!